Data Archiving & Sharing
Supporting transparency in Alzheimer's research.
Research Data Policy
JART supports open science while recognizing Alzheimer's research involves vulnerable populations requiring special data protection considerations.
Data Availability
Clinical Data
De-identified datasets should be shared where ethically permissible. Consider ADNI-style data sharing models.
Imaging Data
Neuroimaging data should be deposited in appropriate repositories with proper consent documentation.
Biomarker Data
Share assay protocols and reference standards to enable reproducibility.
Patient Protection
Dementia Research Sensitivity: Patients with cognitive impairment require heightened privacy protections. Address consent capacity and surrogate decision-making.
- Remove personally identifiable information comprehensively
- Document consent procedures for cognitively impaired patients
- Consider genetic data privacy for APOE and other risk factors
- Follow institutional data governance requirements
Include data availability statements in all manuscripts. Contact editors for guidance.
